If you haven’t guessed yet, we don’t have much free time to keep up with the blog and for us, that’s a good thing. The time at the hospital is spent with August, holding him, feeding him and changing him. We’re not sitting on the sidelines anymore. When we’re not at the hospital, we’re getting ready for Auggie to come home. That means working hard to get our projects wrapped up in the office and organizing everything around the house so he has a place to sleep and play.
We really appreciate all of the support we have received, so I thought the least we could do is provide a quick update and a lot of pictures. 🙂
August is in the home stretch. I didn’t want to use that as the title of this post because there is a chance it is a long stretch. He has come off his last medicine, which was caffeine. We needed to wait 5 days for that to get out of his system before we can really tell if he was ready to be off it. Yesterday was day 5 and he seems to be doing well. What they are looking for are referred to as spells. I think we’ve explained these before, but a quick recap: No drop in heart rate, respiratory rate or oxygen saturation in his blood. He needs to go 5 days without a spell before he can come home. In those 5 days, he also needs to be able to sit in a car seat for 2 hours without a spell. As soon as he as one spell, the 5 days gets reset. (This is the reason it can be a long stretch.)
That’s what we’re waiting for. In the meantime, we are helping him learn to eat. Meg has been able to nurse him fairly successfully for his age. He is also pretty darn good at sucking down a bottle. He is still on the fortified breastmilk, but Meg can nurse him whenever she is there, usually 3-4 feeds a day, more as he’s getting closer to coming home. We are also letting him tell us when he wants to eat instead of waking him up every three hours to eat.
So that’s where we’re at, and now for the good stuff, here’s where Auggie’s at: